Nasce rete pazienti oncologici: dalla formazione ai diritti

3 febbraio 2021 – Informazioni sul percorso di cura e su terapie innovative, un aiuto per il ritorno al lavoro e corsi di formazione per consentire l’inserimento dei pazienti nelle Reti Oncologiche Regionali. Sono alcuni degli obiettivi con cui nasce la Rete Oncologica dei Pazienti Italia (Ropi), lanciata da Fondazione Aiom, Associazione Vivere senza stomaco (si può), Associazione Onconauti e Associazione paziente oncologico Ospedale Sacro Cuore Don Calabria Negrar. Il network, presentato in vista della Giornata mondiale contro il cancro che si celebra il 4 febbraio, mira a prendersi cura dei circa 4 milioni di italiani che hanno avuto la vita segnata da un tumore. “Sebbene da una parte assistiamo a un calo lieve ma continuo della mortalità – spiega Francesco Schittulli, presidente Lega Italiana per la Lotta contro i Tumori (Lilt) – dall’altra l’incidenza continua a crescere e quest’anno saranno oltre 4 milioni gli italiani che avranno vissuto l’esperienza cancro. Si tratta di un esercito di malati che avranno bisogno, insieme ai loro familiari, di cure, supporto e assistenza”. Gli obiettivi della nuova rete, afferma Stefania Gori, presidente Ropi e presidente Fondazione Aiom, “sono quelli di supportare le associazioni e le loro istanze nei confronti delle Istituzioni nazionali e territoriali; di fornire informazione ‘certificata’, pianificare una ‘formazione specifica’ dei pazienti da inserire nelle Reti Oncologiche Regionali come nei gruppi di stesura dei protocolli clinici”. Tra i temi centrali anche il reinserimento sociale e la corretta alimentazione. “La malnutrizione – spiega Claudia Santangelo, presidente di Vivere senza stomaco (si può) – può influire sull’esito delle cure ma è sottovalutata. Il 9% dei malati alla prima diagnosi presenta uno stato di malnutrizione e il 40% ne è a rischio”. Il ruolo delle associazioni “deve diventare prioritario nel rapporto con le Istituzioni e nella collaborazione con le Società Scientifiche”, sottolinea Giordano Beretta, presidente Aiom,”anche per favorire il loro coinvolgimento nella gestione dei problemi che devono essere affrontati dai pazienti e dai loro caregiver”.

38 thoughts on “Nasce rete pazienti oncologici: dalla formazione ai diritti

  • Great tremendous issues here. I?¦m very glad to peer your article. Thank you so much and i’m taking a look ahead to touch you. Will you kindly drop me a e-mail?

  • Nice read, I just passed this onto a colleague who was doing some research on that. And he actually bought me lunch as I found it for him smile So let me rephrase that: Thank you for lunch! “Whenever you have an efficient government you have a dictatorship.” by Harry S Truman.

  • Nice read, I just passed this onto a colleague who was doing a little research on that. And he actually bought me lunch because I found it for him smile Thus let me rephrase that: Thank you for lunch! “Remember It is 10 times harder to command the ear than to catch the eye.” by Duncan Maxwell Anderson.

  • I’m really enjoying the design and layout of your site. It’s a very easy on the eyes which makes it much more pleasant for me to come here and visit more often. Did you hire out a designer to create your theme? Excellent work!

  • I have read several good stuff here. Definitely worth bookmarking for revisiting. I wonder how much effort you put to create such a magnificent informative site.

  • Attractive part of content. I just stumbled upon your site and in accession capital to assert that I acquire in fact loved account your weblog posts. Any way I’ll be subscribing to your feeds and even I fulfillment you get admission to constantly fast.

  • Thanx for the effort, keep up the good work Great work, I am going to start a small Blog Engine course work using your site I hope you enjoy blogging with the popular BlogEngine.net.Thethoughts you express are really awesome. Hope you will right some more posts.

  • Awesome blog! Is your theme custom made or did you download it from somewhere? A theme like yours with a few simple tweeks would really make my blog stand out. Please let me know where you got your design. Appreciate it

  • This is the right blog for anyone who wants to find out about this topic. You realize so much its almost hard to argue with you (not that I actually would want…HaHa). You definitely put a new spin on a topic thats been written about for years. Great stuff, just great!

  • Hiya, I am really glad I have found this info. Nowadays bloggers publish only about gossips and internet and this is really annoying. A good web site with exciting content, this is what I need. Thanks for keeping this site, I will be visiting it. Do you do newsletters? Can’t find it.

  • Hello.This article was extremely motivating, particularly because I was searching for thoughts on this matter last couple of days.

  • This blog is definitely rather handy since I’m at the moment creating an internet floral website – although I am only starting out therefore it’s really fairly small, nothing like this site. Can link to a few of the posts here as they are quite. Thanks much. Zoey Olsen

  • Hi there, I discovered your site by the use of Google while searching for a related topic, your web site came up, it seems to be great. I have bookmarked it in my google bookmarks.

  • I think this website holds some really good info for everyone. “Only the little people pay taxes.” by Leona Helmsly.

  • Its such as you read my thoughts! You seem to understand a lot approximately this, like you wrote the e book in it or something. I feel that you simply could do with some to pressure the message house a bit, however other than that, that is magnificent blog. An excellent read. I’ll certainly be back.

  • Those are yours alright! . We at least need to get these people stealing images to start blogging! They probably just did a image search and grabbed them. They look good though!

  • I?¦ll right away snatch your rss feed as I can not to find your e-mail subscription hyperlink or e-newsletter service. Do you have any? Kindly let me recognize so that I could subscribe. Thanks.

  • I have been browsing online greater than three hours lately, yet I never found any fascinating article like yours. It is lovely price sufficient for me. In my opinion, if all website owners and bloggers made good content as you probably did, the net might be much more useful than ever before.

  • You are my breathing in, I have few blogs and often run out from to brand.

  • Generally I don’t read article on blogs, but I wish to say that this write-up very forced me to try and do so! Your writing style has been amazed me. Thanks, quite nice post.

  • I do agree with all the ideas you have presented in your post. They’re very convincing and will definitely work. Still, the posts are very short for newbies. Could you please extend them a bit from next time? Thanks for the post.

  • Hello are using WordPress for your site platform? I’m new to the blog world but I’m trying to get started and create my own. Do you need any coding expertise to make your own blog? Any help would be greatly appreciated!

  • Really nice layout and excellent content material, absolutely nothing else we require : D.

  • I was recommended this web site by means of my cousin. I’m now not certain whether this submit is written by him as no one else recognize such unique about my difficulty. You are incredible! Thank you!

  • Some genuinely good information, Glad I found this. “They are able because they think they are able.” by Virgil.

  • This is a very good tips especially to those new to blogosphere, brief and accurate information… Thanks for sharing this one. A must read article.

  • As I website owner I think the articles here is very superb, appreciate it for your efforts.

  • I have read some excellent stuff here. Definitely price bookmarking for revisiting. I surprise how much effort you set to create one of these excellent informative site.

  • F*ckin¦ awesome things here. I am very happy to see your post. Thanks a lot and i am looking forward to contact you. Will you please drop me a e-mail?

  • Have you ever considered writing an e-book or guest authoring on other blogs? I have a blog centered on the same information you discuss and would love to have you share some stories/information. I know my audience would appreciate your work. If you are even remotely interested, feel free to shoot me an email.

  • Superb blog you have here but I was wondering if you knew of any message boards that cover the same topics talked about in this article? I’d really like to be a part of community where I can get suggestions from other experienced people that share the same interest. If you have any recommendations, please let me know. Thanks a lot!

  • Thanks for all your effort on this web page. My mom delights in setting aside time for investigations and it’s easy to understand why. Most of us learn all about the powerful mode you provide insightful solutions on this web site and even improve contribution from other ones on the concept then my girl is studying a great deal. Enjoy the remaining portion of the year. You have been performing a splendid job.

Lascia un commento

Il tuo indirizzo email non sarà pubblicato. I campi obbligatori sono contrassegnati *